(CNN) Being present to witness the birth of my twins, Stokely and Sadie, changed my life.
I was instantly moved to become a better version of myself, and my pursuit for a more just and equitable America was deepened. Most parents can attest to similar emotions after the birth of a child. But unfortunately for some, like me, these emotions are coupled with deep anxiety and concern.
My daughter Sadie was born with biliary atresia, a rare condition that ultimately led to liver failure at 4 months and the urgent need for a liver transplant. After enduring 93 long days on the transplant list, Sadie was finally blessed with a new liver. Although my family will forever be grateful for this miracle and the donor family, we cannot overlook the distress sparked by a severely broken organ donation system which leaves 20 Americans to die per day while on the organ waiting list.